NC BRFSS Internet Catalog of Surveys

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Internet Catalog of Clinical Surveys

National Survey of Prostate Disease and Quality of Life

Women's Health Interview Study

ICICE Baseline Interview for Diabetes Patients

ICICE Baseline Interview for Adult Asthma Patients - Age 18+

Medical Outcomes Study Core Survey Instrument

Note: Following the links listed below will open a new browser window with the main web site for the survey. Just close that window to return to this list.

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National Survey of Prostate Disease and Quality of Life

The National Survey of Prostate Disease and Quality of Life was initiated in 1994 by researchers at the National Cancer Institute (N.C.I) to examine the impact that treatments for primary prostate cancer have on the quality of life of men living with prostate cancer. To identify the sample, survey researchers collaborated with six cancer registries that are part of NCI's SEER Program, established in 1973 to collect cancer data on a routine basis from designated cancer registries across the country. Because the population prevalence of prostate cancer is low (less than 5% of males, age 40+), multiple years of BRFSS data would be needed for conducting an analysis of the quality of life among males with prostate cancer. Despite this limitation, there are some questions worth considering for ongoing surveillance purposes: for example, "Did any doctor talk with you about having no treatment at all for prostate cancer (sometimes called 'watchful waiting')?"

Women's Health Interview Study

Like the previously mentioned survey on prostate cancer, the Women's Health Interview Study (WHIS) is also a clinically-based survey on the risk of breast cancer. The survey was sponsored by the Division of Cancer Epidemiology and Genetics within the National Cancer Institute. The focus of the Division is on population-based research on environmental and genetic determinants of cancer. Given the limitations for studying the prevalence of rare diseases in the BRFSS, questions from the WHIS survey of breast cancer risk would require multi-year surveillance for conducting analyses. A sample question from the survey (pg. 32): "Who first noticed the problem that led to the discovery of your breast cancer? ... Routine self-exam, Accidental self-discovery, Accidental discovery by partner, Routine physical exam by a doctor, Routine mammogram, Some other way (specify)?"

About the RAND Survey Research Group & ICICE Study
The RAND Survey Research Group (SRG) was established in 1972 as a survey research arm of the RAND Corporation. The RAND Corporation has been in existence since 1948 and is the Nation’s first and preeminent “think tank.” Over the past twenty-five years, SRG has become known for innovative survey planning, data collection, and methodological research. SRG conducts general population surveys of all kinds and is experienced with interviewing subsets of the general population such as the elderly, Medicaid recipients, homeless, the mentally ill, and drug users. The two RAND surveys featured below are part of a four-year Robert Wood Johnson evaluation study entitled, Improving Chronic Illness Care Evaluation (ICICE). The study is designed to provide practical guidance to health care organizations seeking to improve care for patients with chronic disease. Subjects for the study were selected from registries and administrative databases from each of the participating evaluation sites.

ICICE Baseline Interview for Diabetes Patients

This (phone) baseline interview for the ICICE diabetes patients focuses on their experiences and needs related to diabetes, their quality of life, the type of care they receive, and other conditions that affect their health and well-being. We feature this questionnaire because of its usefulness for developing a Diabetes Awareness & Management Module. For those wishing to build an extended BRFSS Diabetes Module, the ICICE diabetes baseline survey offers an excellent source of diabetes management, knowledge and care questions. For example, a question from the survey designed to test one’s knowledge of blood sugar, “Exercise causes your blood sugar to: 1. Go up; 2. Stay the same; 3. Go down; 4. DON’T KNOW”.

ICICE Baseline Interview for Adult Asthma Patients - Age 18+

As with the ICICE diabetes questionnaire, the ICICE survey for adult asthma patients would provide an excellent base for building an extended BRFSS Adult Asthma Module. The ICICE asthma survey contains items on adherence to asthma medications (e.g., During the last 4 weeks, how often did you check your peak flows at home?), self efficacy and perceived control of asthma (e.g., I can do a lot of things to cope with my asthma.), knowledge of asthma (e.g., People with asthma cannot monitor how well their lungs are working.), health related quality of life, asthma related symptoms and severity of symptoms, use of health services, and satisfaction with health care providers (e.g., In the past 6 months, how often did the health providers who treated your asthma explain things in a way you could understand?).

Medical Outcomes Study Core Survey Instrument

The Medical Outcomes Study (MOS) was a two-year longitudinal study of patients with chronic conditions. The 116-item core MOS Survey (self-administered questionnaire) measures health-related quality of life (HRQOL) across three broad areas of functioning: physical health (e.g., physical functioning, satisfaction with physical ability, mobility, pain), mental health (e.g., psychological distress, anxiety and depression, positive affect and feelings of belonging), and general health (e.g., energy/fatigue, sleep problems, social functioning and role functioning). The HRQOL measures are generic in that they assess health concepts that are relevant to all adults and can be used to compare the health of different groups, such as the sick and the well. The MOS has been used extensively in medical studies across the country and the MOS instrument itself has also been extensively studied. The SF-36, which is featured in this catalog, is a subset of items from the MOS Core Survey. A typical question from the MOS Survey that would be suitable for the BRFSS Survey: “How satisfied are you with your physical ability to do what you want to do?”

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Page Last Updated September 06, 2011


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Birth Defects Monitoring Program Central Cancer Registry Operations Health & Spatial Analysis Statistical Services BRFSS CHAMP PRAMS Vital Records Birth Defects BRFSS Cancer CHAMP County-level Data Health Atlas HealthStats Minority Health PRAMS Vital Statistics Other Data Understanding Data Query System		Welcome to the North Carolina BRFSS Internet Catalog of Clinical Surveys National Survey of Prostate Disease and Quality of Life Women's Health Interview Study ICICE Baseline Interview for Diabetes Patients ICICE Baseline Interview for Adult Asthma Patients - Age 18+ Medical Outcomes Study Core Survey Instrument Note: Following the links listed below will open a new browser window with the main web site for the survey. Just close that window to return to this list. Return to the Survey Catalog Home Page National Survey of Prostate Disease and Quality of Life The National Survey of Prostate Disease and Quality of Life was initiated in 1994 by researchers at the National Cancer Institute (N.C.I) to examine the impact that treatments for primary prostate cancer have on the quality of life of men living with prostate cancer. To identify the sample, survey researchers collaborated with six cancer registries that are part of NCI's SEER Program, established in 1973 to collect cancer data on a routine basis from designated cancer registries across the country. Because the population prevalence of prostate cancer is low (less than 5% of males, age 40+), multiple years of BRFSS data would be needed for conducting an analysis of the quality of life among males with prostate cancer. Despite this limitation, there are some questions worth considering for ongoing surveillance purposes: for example, "Did any doctor talk with you about having no treatment at all for prostate cancer (sometimes called 'watchful waiting')?" Women's Health Interview Study Like the previously mentioned survey on prostate cancer, the Women's Health Interview Study (WHIS) is also a clinically-based survey on the risk of breast cancer. The survey was sponsored by the Division of Cancer Epidemiology and Genetics within the National Cancer Institute. The focus of the Division is on population-based research on environmental and genetic determinants of cancer. Given the limitations for studying the prevalence of rare diseases in the BRFSS, questions from the WHIS survey of breast cancer risk would require multi-year surveillance for conducting analyses. A sample question from the survey (pg. 32): "Who first noticed the problem that led to the discovery of your breast cancer? ... Routine self-exam, Accidental self-discovery, Accidental discovery by partner, Routine physical exam by a doctor, Routine mammogram, Some other way (specify)?" About the RAND Survey Research Group & ICICE Study The RAND Survey Research Group (SRG) was established in 1972 as a survey research arm of the RAND Corporation. The RAND Corporation has been in existence since 1948 and is the Nation’s first and preeminent “think tank.” Over the past twenty-five years, SRG has become known for innovative survey planning, data collection, and methodological research. SRG conducts general population surveys of all kinds and is experienced with interviewing subsets of the general population such as the elderly, Medicaid recipients, homeless, the mentally ill, and drug users. The two RAND surveys featured below are part of a four-year Robert Wood Johnson evaluation study entitled, Improving Chronic Illness Care Evaluation (ICICE). The study is designed to provide practical guidance to health care organizations seeking to improve care for patients with chronic disease. Subjects for the study were selected from registries and administrative databases from each of the participating evaluation sites. ICICE Baseline Interview for Diabetes Patients This (phone) baseline interview for the ICICE diabetes patients focuses on their experiences and needs related to diabetes, their quality of life, the type of care they receive, and other conditions that affect their health and well-being. We feature this questionnaire because of its usefulness for developing a Diabetes Awareness & Management Module. For those wishing to build an extended BRFSS Diabetes Module, the ICICE diabetes baseline survey offers an excellent source of diabetes management, knowledge and care questions. For example, a question from the survey designed to test one’s knowledge of blood sugar, “Exercise causes your blood sugar to: 1. Go up; 2. Stay the same; 3. Go down; 4. DON’T KNOW”. ICICE Baseline Interview for Adult Asthma Patients - Age 18+ As with the ICICE diabetes questionnaire, the ICICE survey for adult asthma patients would provide an excellent base for building an extended BRFSS Adult Asthma Module. The ICICE asthma survey contains items on adherence to asthma medications (e.g., During the last 4 weeks, how often did you check your peak flows at home?), self efficacy and perceived control of asthma (e.g., I can do a lot of things to cope with my asthma.), knowledge of asthma (e.g., People with asthma cannot monitor how well their lungs are working.), health related quality of life, asthma related symptoms and severity of symptoms, use of health services, and satisfaction with health care providers (e.g., In the past 6 months, how often did the health providers who treated your asthma explain things in a way you could understand?). Medical Outcomes Study Core Survey Instrument The Medical Outcomes Study (MOS) was a two-year longitudinal study of patients with chronic conditions. The 116-item core MOS Survey (self-administered questionnaire) measures health-related quality of life (HRQOL) across three broad areas of functioning: physical health (e.g., physical functioning, satisfaction with physical ability, mobility, pain), mental health (e.g., psychological distress, anxiety and depression, positive affect and feelings of belonging), and general health (e.g., energy/fatigue, sleep problems, social functioning and role functioning). The HRQOL measures are generic in that they assess health concepts that are relevant to all adults and can be used to compare the health of different groups, such as the sick and the well. The MOS has been used extensively in medical studies across the country and the MOS instrument itself has also been extensively studied. The SF-36, which is featured in this catalog, is a subset of items from the MOS Core Survey. A typical question from the MOS Survey that would be suitable for the BRFSS Survey: “How satisfied are you with your physical ability to do what you want to do?” Return to the Survey Catalog Home Page Page Last Updated September 06, 2011 Contact Us \| Directions to SCHS \| Site Map \| DHHS Disclaimer